I apologize for being redundant, but I just HAD to post this again on my blog. In preparing for a Family Home Evening Lesson tonight, I was feeling lazy. I wanted something meaningful, but not something that would take a long time to prepare. I spent all day at the Dr's office again today getting rehydrated. I know the talks were great in General Conference, but this was one conference I will get the most out of by reading the Ensign, as I spent most of the weekend sleeping or throwing up.
Anyway, I remembered this YouTube clip I had posted last summer and as I watched it I cried and cried. This last "Friday" for me has felt long and hard -- too hard. At times I have wondered if I would come out of it or if it was worth it to keep fightting and hoping for Sunday.
So this clip and the Finding Faith in Christ DVD with a testimony meeting was our lesson. Maybe it is "lazy" prep, but it was sweet.
Sunday will come. Sunday will come. Sunday does come. I know the Savior lives. I know He loves me. "I stand all amazed" at the grace given me each day. At the beginning of so many days lately, the hours loom ahead and I wonder, "Can I really make it through this day?" At the close of each day, I am so grateful for the people and things the Savior has blessed me with. I am truly strengthened by angels each day. Here on the earth and those on the other side whose presence is very real.
I am grateful for beautiful music. That is one of the things I did hear in General Conference this weekend. Each song was for me -- sorry for any of you who think otherwise. ;) When the Mormon Tabernacle Choir sang, How Firm a Foundation, tears started immediately. And, that last verse - so long a favorite - holds a dear promise for me:
"The soul that on Jesus hath leaned for repose,
I cannot, I will not, desert to his foes,
That soul, though all hell should endeavor to shake,
I'll never, no never, I'll never, no never,
I'll never, no never, no never forsake."
And, tonight, since it was Caleb's turn to pick the opening song in FHE, we sang it again (that is what he always picks -- so we sing it at least once a month in FHE).
The sad truth is, now that I am pumped full of anti-nausea and pain meds and vitamins and minerals, I do have more hope than I had this weekend. I need to learn how to have hope without those things, but they SURE DO make it easier.
Monday, April 5, 2010
Monday, March 29, 2010
On the Dark Side
Okay, I know it looks like I am headed off for some inter-galactic space mission. But, I am not being loaded into a space shuttle in this picture. That would be MUCH cooler. It also may look like I am set to take a little siesta: just kicked back, relaxed and ready to snooze. That is not what is going on here, either.
This next picture gives a better view of the real story:
And, I may look like I am smiling; but it is only for the camera. Meet Tomo -- that is what I call this lovely machine that has become my arch-enemy in the last week. Meet the machine that I am supposed to be grateful for, but am really trying to decide if it is a blessing or a curse.
Tomo is mean. Tomo looks harmless. Tomo looks kind of cool and space-agey. Tomo seems friendly as I get to interact with Tomo while laying on a pillow and have my leg propped up comfortably. There are even kind, compassionate, adorable people who push the buttons on Tomo to make him come to life. But, as soon as these lovely people leave the room and Tomo comes to life, the REAL Tomo appears. This is the Tomo that makes a clicking noise that makes you think of a sprinkler and a broken record stuck on the same pitch. But that is not the worst of it. Tomo even gets your stomach on his side. So by the time you are finished, your stomach is a mass of twisted, churning gunk and your equilibrium decides to take a vacation. By the time you get home (a short 25 minutes later) you are so violently ill that even water is a detestable sight. And, getting things to stay in that stomach that is now on Tomo's side? Impossible! Water, soup, salad, juice, fruit -- Tomo is no respecter of food. All of it has gone to the enemy's side. Or, maybe it is not the fault of the food. Maybe my taste-buds have gone to the dark side.
I have decided that I HATE radiation. This is supposed to be the "easy"-er kind. This is supposed to be the kind of radiation that targets the tumors only and doesn't get any healthy tissue (or very little), allowing for a major reduction of all or most side effects. Maybe I should be grateful --- maybe this IS good for radiation. Just think. It only took 6-7 hours at the Dr.'s on Friday to get re-hydrated and re-mineralized. Maybe that is good for most people.
Maybe I have something to look forward to in all of this: maybe I will get super skinny and be able to fit back into all those old clothes.
Hopefully, we can get this wrinkled out soon. In the meantime, I am trying to look at the good side of Tomo -- what is that? It does LOOK cool and since I have to see Tomo 5 days/week, by the end, I am determined to come out on top and TAME that beast!
Friday, March 12, 2010
Spatchcock Link
It is not a bad word, I promise............ :)
Check it out!
Simply Scrumptious
Here is the unveiling to a new blog I have been wanting to start (just for fun) on fast, yummy, cheap, (and hopefully -- MOSTLY) healthy meals. I welcome suggestions.
Check it out!
Simply Scrumptious
Here is the unveiling to a new blog I have been wanting to start (just for fun) on fast, yummy, cheap, (and hopefully -- MOSTLY) healthy meals. I welcome suggestions.
Wednesday, March 10, 2010
Can March Showers Bring April Flowers?
I know how the rhyme goes, "April showers brings May flowers", but we have had plenty of rain here lately and are ready for some flowers sooner than May. As grateful as we are for the rain, it has felt a bit like living in Seattle lately. Today, though, as I sit on the couch with the sliding glass door open, listening to the birds sing in the leafy tree tops, I am grateful for the sunshine that is here today. We need both rain and sunshine to help us grow. Our family has been reminded of this lately.
One reason that I have not been good at keeping up the blog the last few months is that I really haven't wanted to complain. The cancer is growing again and we are in a pretty rough patch at the moment. We were so thankful last week when the PET/CT scan showed no spreading of the cancer, but the 2 tumors we have been fighting since last summer are each 20 cm. I have been in an incredible amount of pain on an almost daily basis and I have worried about how tough it would be on my kids go through this again - or still.
I am impressed, grateful and humbled by my children's and husband's courage and compassion through all of this. They treat me like a "normal" mom, while yet watching out for me constantly. Caleb is always there, not just willing to do what I ask, but jumping in and saying, "Mom, let me do that." Emma is there with chatter to talk about her day, tell me about her book or just to be sunshine for us. Rick has taken time off work, fixed dinners, shopped, cleaned, done laundry, run errands, slept on the other couch by me when I was in too much pain to sleep in the bed, and has made such an effort to be cheerful and playful with the kids when I know he has been worried sick at times.
There have been too many moments in the last few weeks when I have cried, feeling completely inadequate as a mom and wife and person. This is not the life I wanted. I wanted to be the one to serve and help, not the one to be served. Serving is such a part of our testimony of and love for the Savior. I kept thinking that I don't know of any scriptures that say, "It is blessed to BE served."
Then, Caleb did some planting. I love watching plants grow. There is something about gardening (vegetable gardening) that just makes me so happy. And Caleb loves it, too. Thank goodness, because we wouldn't have anything growing this year if it wasn't for him. Anyway, we have some plants growing; tiny little seedlings poking their heads up through the dirt. And, I had an "a-ha" moment. Plants need water/rain and sunshine. They will not grow without it. They cannot give it to themselves. They cannot weed themselves. They cannot even plant themselves. We must take care of these little plants by giving them what they need so they will grow and "fill the measure of their creation." Seeds must fight to break open and to push upward through the dirt to the light. Lately, we have gotten more rain than I ever expected living in Arizona. I am sure some of these little baby plants wanted to scream, "Enough! I have had enough rain! I don't need that much. I don't need any more! I can grow now with what I've gotten! Make it stop!" But, when the sun came out, they felt warmed and refreshed.
I am not saying that Heavenly Father "sent" the rain into my life. I do not believe it. We live in a very mortal world where bad things happen. Sometimes bad things happen because of choices we make and they are consequences. Sometimes bad things just happen. But, we DO need that rain. We cannot grow and become stronger without it. We cannot have only sunshine. We cannot have only rain. We want to be like the Savior; we want to live with Him someday and to be worthy of all He has for us. Yet, we don't want to sacrifice, be betrayed, be hurt, suffer, be humbled -- because it is hard! How would we learn persistence, determination, courage and FAITH without moments that challenge us? Without having a little "dirt" to fight through to get to the light? Without "rain" that comes?
When the sunshine has come - and it has and does continue to come -- I feel so warmed. I have such a great family, such wonderful supportive friends, and a Savior who continues to hold my hand so I can face the storms. He walks with me, teaches me and has taught me that, alone, I can do nothing; with Him, I can do all things that are asked of me. He gives me strength to handle and do more than I thought was possible.
A few weeks ago I was asked to introduce Brother Mark Mabry (Reflections of Christ) who was coming to speak to our stake Relief Society. (see link) As I listened to him speak that night I again was touched to realize that, even as little as I have to give, if I am willing to give it to the Lord to use, He will find a way to increase my offering. I still feel like what I have to give is a widow's mite compared to most others, so now I am learning to enjoy what others have to offer because it truly strengthens me. I have been way too self-centered!
Here is a link to a medley of songs I love and it describes so much of what carries me through each day. Hopefully, someday, my voice will feel like "mine" again after doing so much chemotherapy, but it was still a treat to sing this: arranged and played by Brent Jorgensen. Such a kind person (and talented)! I am grateful for the Savior and for the ultimate Service He gave and that we must learn to accept.
As far as the cancer goes, to answer questions:
1. I have a new Dr. I am working with whom I L-O-V-E so far. He is running tests that I think should have been done 2 years ago. He does the same chemo treatment, although, so far it has been easier to get through and they monitor me much better throughout the treatment. Fewer side effects and I am already noticing a difference after 2 treatments. He also does a few other things that I feel like may get to some of the root issues
2. Rick and I meet with a Radiation Oncologist tomorrow to discuss a new(ish) form of Radiation called TomoRadiation that is supposed to target tumors more specifically -- not just blast an area with high amounts of radiation. Hopefully, less side effects and it is supposed to be way more effective. We will see what we think.
3. It is great to have family here. We have been spoiled and are grateful. I am grateful that families are forever!
4. Our ward has been amazing. I miss Texas and all our friends (who we feel are family) in Round Rock, and I never thought to find that kind of support here, but here it is. We are constantly being told, "We are on stand-by."
Thanks for the sunshine you all give our family. We love you all!
One reason that I have not been good at keeping up the blog the last few months is that I really haven't wanted to complain. The cancer is growing again and we are in a pretty rough patch at the moment. We were so thankful last week when the PET/CT scan showed no spreading of the cancer, but the 2 tumors we have been fighting since last summer are each 20 cm. I have been in an incredible amount of pain on an almost daily basis and I have worried about how tough it would be on my kids go through this again - or still.
I am impressed, grateful and humbled by my children's and husband's courage and compassion through all of this. They treat me like a "normal" mom, while yet watching out for me constantly. Caleb is always there, not just willing to do what I ask, but jumping in and saying, "Mom, let me do that." Emma is there with chatter to talk about her day, tell me about her book or just to be sunshine for us. Rick has taken time off work, fixed dinners, shopped, cleaned, done laundry, run errands, slept on the other couch by me when I was in too much pain to sleep in the bed, and has made such an effort to be cheerful and playful with the kids when I know he has been worried sick at times.
There have been too many moments in the last few weeks when I have cried, feeling completely inadequate as a mom and wife and person. This is not the life I wanted. I wanted to be the one to serve and help, not the one to be served. Serving is such a part of our testimony of and love for the Savior. I kept thinking that I don't know of any scriptures that say, "It is blessed to BE served."
Then, Caleb did some planting. I love watching plants grow. There is something about gardening (vegetable gardening) that just makes me so happy. And Caleb loves it, too. Thank goodness, because we wouldn't have anything growing this year if it wasn't for him. Anyway, we have some plants growing; tiny little seedlings poking their heads up through the dirt. And, I had an "a-ha" moment. Plants need water/rain and sunshine. They will not grow without it. They cannot give it to themselves. They cannot weed themselves. They cannot even plant themselves. We must take care of these little plants by giving them what they need so they will grow and "fill the measure of their creation." Seeds must fight to break open and to push upward through the dirt to the light. Lately, we have gotten more rain than I ever expected living in Arizona. I am sure some of these little baby plants wanted to scream, "Enough! I have had enough rain! I don't need that much. I don't need any more! I can grow now with what I've gotten! Make it stop!" But, when the sun came out, they felt warmed and refreshed.
I am not saying that Heavenly Father "sent" the rain into my life. I do not believe it. We live in a very mortal world where bad things happen. Sometimes bad things happen because of choices we make and they are consequences. Sometimes bad things just happen. But, we DO need that rain. We cannot grow and become stronger without it. We cannot have only sunshine. We cannot have only rain. We want to be like the Savior; we want to live with Him someday and to be worthy of all He has for us. Yet, we don't want to sacrifice, be betrayed, be hurt, suffer, be humbled -- because it is hard! How would we learn persistence, determination, courage and FAITH without moments that challenge us? Without having a little "dirt" to fight through to get to the light? Without "rain" that comes?
When the sunshine has come - and it has and does continue to come -- I feel so warmed. I have such a great family, such wonderful supportive friends, and a Savior who continues to hold my hand so I can face the storms. He walks with me, teaches me and has taught me that, alone, I can do nothing; with Him, I can do all things that are asked of me. He gives me strength to handle and do more than I thought was possible.
A few weeks ago I was asked to introduce Brother Mark Mabry (Reflections of Christ) who was coming to speak to our stake Relief Society. (see link) As I listened to him speak that night I again was touched to realize that, even as little as I have to give, if I am willing to give it to the Lord to use, He will find a way to increase my offering. I still feel like what I have to give is a widow's mite compared to most others, so now I am learning to enjoy what others have to offer because it truly strengthens me. I have been way too self-centered!
Here is a link to a medley of songs I love and it describes so much of what carries me through each day. Hopefully, someday, my voice will feel like "mine" again after doing so much chemotherapy, but it was still a treat to sing this: arranged and played by Brent Jorgensen. Such a kind person (and talented)! I am grateful for the Savior and for the ultimate Service He gave and that we must learn to accept.
As far as the cancer goes, to answer questions:
1. I have a new Dr. I am working with whom I L-O-V-E so far. He is running tests that I think should have been done 2 years ago. He does the same chemo treatment, although, so far it has been easier to get through and they monitor me much better throughout the treatment. Fewer side effects and I am already noticing a difference after 2 treatments. He also does a few other things that I feel like may get to some of the root issues
2. Rick and I meet with a Radiation Oncologist tomorrow to discuss a new(ish) form of Radiation called TomoRadiation that is supposed to target tumors more specifically -- not just blast an area with high amounts of radiation. Hopefully, less side effects and it is supposed to be way more effective. We will see what we think.
3. It is great to have family here. We have been spoiled and are grateful. I am grateful that families are forever!
4. Our ward has been amazing. I miss Texas and all our friends (who we feel are family) in Round Rock, and I never thought to find that kind of support here, but here it is. We are constantly being told, "We are on stand-by."
Thanks for the sunshine you all give our family. We love you all!
Friday, January 15, 2010
Life is in the little things
Our life hasn't been super exciting lately - just a bunch of little things.
1. Loads of Tender Mercies. Example: Caleb's LaCrosse league canceled their next season due to small numbers, but I found another league for him that is bigger, better organized and practice is 7 minutes away (instead of 25) - during the last few days of the new season registration. May not seem like a big deal, but we have been trying to find somethings active for him for years, and now that he has found something he loves we didn't want him to have to stop.
2. Back to the Grind. Treatments, Homework, Bills, Homework, Scouts, Homework, Activity Days, Homework, Dr. appts, Homework, Treatments, Homework, Parent/Teacher Conferences, Homework, Music, Homework, Bills, Homework, Cleaning the House, Homework, Treatments, Dr. appts, Etc. Etc. You get the idea.... Can you tell that I can't wait for the summer part to get rid of the homework?
3. New Year's Goals. Our Stake President challenged us to read the Book of Mormon this year. We are doing it as a family, but this is the first time everyone in the family is really old enough to do it on their own individually. What a joy to see our children grab a hold of this challenge and to see their confidence grow. Emma has come to me several times already asking about things, leading to some great discussions -- how FUN!
4. Realizations each day about how great our life is. We have been blessed with so much! I am constantly aware of how mindful the Lord is of me and our little family. There is so much joy to be had every day. This week my Sunday School lesson will be on the Creation. In preparing for it, I am truly thankful for this beautiful world and for our Heavenly Father giving us a Savior providing us a way to come back to Him. I am grateful for my amazing body! It has been through so much and it continues to work. I am grateful for my Heavenly Father who gives me breath each day. One of my 3 chemos got changed in December and the new one makes me incredibly miserable afterwards. I just seem to finally feel like I am not exhausted by 8am when it is time for another round. The last few months have been physically very very rough for me in how I feel. I truly am grateful to be here! This world, even with all the wickedness and sorrow is so good and there are so many wonderful people and there is so much to experience. I am grateful for the experiences I get to have.
1. Loads of Tender Mercies. Example: Caleb's LaCrosse league canceled their next season due to small numbers, but I found another league for him that is bigger, better organized and practice is 7 minutes away (instead of 25) - during the last few days of the new season registration. May not seem like a big deal, but we have been trying to find somethings active for him for years, and now that he has found something he loves we didn't want him to have to stop.
2. Back to the Grind. Treatments, Homework, Bills, Homework, Scouts, Homework, Activity Days, Homework, Dr. appts, Homework, Treatments, Homework, Parent/Teacher Conferences, Homework, Music, Homework, Bills, Homework, Cleaning the House, Homework, Treatments, Dr. appts, Etc. Etc. You get the idea.... Can you tell that I can't wait for the summer part to get rid of the homework?
3. New Year's Goals. Our Stake President challenged us to read the Book of Mormon this year. We are doing it as a family, but this is the first time everyone in the family is really old enough to do it on their own individually. What a joy to see our children grab a hold of this challenge and to see their confidence grow. Emma has come to me several times already asking about things, leading to some great discussions -- how FUN!
4. Realizations each day about how great our life is. We have been blessed with so much! I am constantly aware of how mindful the Lord is of me and our little family. There is so much joy to be had every day. This week my Sunday School lesson will be on the Creation. In preparing for it, I am truly thankful for this beautiful world and for our Heavenly Father giving us a Savior providing us a way to come back to Him. I am grateful for my amazing body! It has been through so much and it continues to work. I am grateful for my Heavenly Father who gives me breath each day. One of my 3 chemos got changed in December and the new one makes me incredibly miserable afterwards. I just seem to finally feel like I am not exhausted by 8am when it is time for another round. The last few months have been physically very very rough for me in how I feel. I truly am grateful to be here! This world, even with all the wickedness and sorrow is so good and there are so many wonderful people and there is so much to experience. I am grateful for the experiences I get to have.
Christmas -- priceless
Christmas was fabulous. Our Christmas Day itself was quiet and wonderful. We didn't go anywhere, we were in our pajamas for most of the day and we enjoyed just being together. We had some amazing moments that had nothing to do with presents that were just pure joy. It all started because we had not gotten home early enough the night before to read the Christmas story from the Bible the way we usually do on Christmas Eve. Rick and I decided to put kids (and us) to bed and read the story in the morning. We may do this every year from now on. It was lovely. After the fun and laughter of stockings, we gathered by the tree and took turns reading different parts of the story. The kids each wanted to take a different part; I felt so fulfilled to see them so eager to share a part and to share their feelings and ask questions and give their insights.
Because I had just had chemo 3 days before and was feeling pretty cruddy, I had decided not to make cinnamon rolls for our Christmas breakfast this year; we were going to have big store-bought muffins instead. It is the only time I make cinnamon rolls during the year and they are big, fat, gooey, amazing and completely unhealthy, so the kids were bummed, but very understanding. Aunt Amanda surprised us with a big pan of them on Christmas Eve (very sneaky to ask if I had a good recipe since she didn't have any of her cookbooks here and wanted to make some for Christmas morning for HER family) -- I was so touched! I know that that particular recipe isn't the most economical time-wise or ingredient-wise. Anyway, we had put them in the oven before our story and they weren't done yet so we had time to wait.
We decided to sit in a circle and go around and tell each other why we loved each other. I will not say what everyone said as it is so personal, but I will tell you this: 11-year-old boys can surprise you at times with their sensitivity. Caleb's comment was probably the best Christmas present I received that day. I will never ever forget it.
Then, Rick and I were in the other room talking and we heard the best thing ever. I am sorry not to have pictures on here -- I haven't downloaded them yet -- but it was such a present. Caleb had gotten out his french horn and he and Emma were playing a duet of Jingle Bells. Emma was on the piano. Rick and I melted! To see them think of that on their own and have such fun doing it together was a great memory! After they put up with pictures and videotaping, they made me get my flute out and join them.
Our morning was a MasterCard commercial -- definitely priceless!!!!
Because I had just had chemo 3 days before and was feeling pretty cruddy, I had decided not to make cinnamon rolls for our Christmas breakfast this year; we were going to have big store-bought muffins instead. It is the only time I make cinnamon rolls during the year and they are big, fat, gooey, amazing and completely unhealthy, so the kids were bummed, but very understanding. Aunt Amanda surprised us with a big pan of them on Christmas Eve (very sneaky to ask if I had a good recipe since she didn't have any of her cookbooks here and wanted to make some for Christmas morning for HER family) -- I was so touched! I know that that particular recipe isn't the most economical time-wise or ingredient-wise. Anyway, we had put them in the oven before our story and they weren't done yet so we had time to wait.
We decided to sit in a circle and go around and tell each other why we loved each other. I will not say what everyone said as it is so personal, but I will tell you this: 11-year-old boys can surprise you at times with their sensitivity. Caleb's comment was probably the best Christmas present I received that day. I will never ever forget it.
Then, Rick and I were in the other room talking and we heard the best thing ever. I am sorry not to have pictures on here -- I haven't downloaded them yet -- but it was such a present. Caleb had gotten out his french horn and he and Emma were playing a duet of Jingle Bells. Emma was on the piano. Rick and I melted! To see them think of that on their own and have such fun doing it together was a great memory! After they put up with pictures and videotaping, they made me get my flute out and join them.
Our morning was a MasterCard commercial -- definitely priceless!!!!
Friday, December 4, 2009
Elementary Band parents
Last night I went to my first ever Elementary School Band Concert. I never was in band in elementary school and my perspective would have been different anyway.
Well, what an experience!!!! I was in band in Jr. High and High School and I never ever heard that kind of enthusiasm in the audience! As soon as the students came walking onto the stage, there were 30 parents up there, front and center, snapping pictures of their child with their instrument. And I knew how they felt (I made Rick go up and take a picture of Caleb sitting there with his French Horn).
The 5th Grade Beginning Band started out the program and when they finished their first song, the applause was deafening. And, when they had finished their 5th and final song (Jingle Bells), and stood up, there was whistling, cheering, and so much applause, you would have thought you were at a Taylor Swift concert.
I get it, though. You see, I am an Elementary Band Parent. In the fullest degree. :) After listening to the practicing (reminding that practice does not mean going around the house and blowing noises in the mouthpiece in people's ears) and going to the music store for several books and helping to remember which days to bring the French Horn to school, going back home on the days we forgot to get the French Horn, I am so proud of Caleb and all he has accomplished. I don't want him to quit. So I will clap and cheer with everyone else. Seeing Caleb's smile (trying not to smile like it is any big deal when I know it is to him), was a happy feeling.
I was happy to hear him after the concert. "Mom, did you hear the 6th Graders? I can't wait to play those songs!"
Really, I think anyone would have been impressed. You could even tell what every song was.
Well, what an experience!!!! I was in band in Jr. High and High School and I never ever heard that kind of enthusiasm in the audience! As soon as the students came walking onto the stage, there were 30 parents up there, front and center, snapping pictures of their child with their instrument. And I knew how they felt (I made Rick go up and take a picture of Caleb sitting there with his French Horn).
The 5th Grade Beginning Band started out the program and when they finished their first song, the applause was deafening. And, when they had finished their 5th and final song (Jingle Bells), and stood up, there was whistling, cheering, and so much applause, you would have thought you were at a Taylor Swift concert.
I get it, though. You see, I am an Elementary Band Parent. In the fullest degree. :) After listening to the practicing (reminding that practice does not mean going around the house and blowing noises in the mouthpiece in people's ears) and going to the music store for several books and helping to remember which days to bring the French Horn to school, going back home on the days we forgot to get the French Horn, I am so proud of Caleb and all he has accomplished. I don't want him to quit. So I will clap and cheer with everyone else. Seeing Caleb's smile (trying not to smile like it is any big deal when I know it is to him), was a happy feeling.
I was happy to hear him after the concert. "Mom, did you hear the 6th Graders? I can't wait to play those songs!"
Really, I think anyone would have been impressed. You could even tell what every song was.
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