Tuesday, December 16, 2008
A hint to all the players on the next season: cut off a leg and you will probably win.
Friday, December 12, 2008
Anyway, it is over for now and I PROMISE, not to post anything more about moving (at least until it is a done deal). I don't even want to talk about it. bleck!
A few days ago, I decided that regardless of what was going to happen, it was time for our family to have some Christmas. So..... we set up the tree last night and have been playing Christmas music and are trying to have some Christmas spirit.
The kids have been amazing through all of this. I am so grateful for them! And I am glad it is Christmastime to have something so wonderful to focus on!
Anyway, I am DONE. I just thought I would keep everyone "posted." I am done with this and it is time to celebrate that at least it is over. I am "decking" our "halls" today and I am happy.
Wednesday, December 3, 2008
There is a fine line between trying to be Christian and not letting yourself get walked all over. We are struggling to find that line. We want to be kind, yet we are paying a small fortune for the moving vans alone.
I have learned through all of this that I am a very very trusting soul. I thought I was getting more cynical in my old age, but apparently not. I still believe people when they tell me things.
AND, I can't find my camera. I know I kept it out, but it is somewhere in one of the cars or the cab of one of the moving vans. I know not where. And the kids have been the cutest and I can't even take pictures of them. *sigh*
I can relate to this scripture lately: 1 Nephi 11:17: "I know that [God] loveth his children; nevertheless, I do not know the meaning of all things." Without this knowledge and comfort, I would be a wreck.
On Thanksgiving Day, when we weren't where we expected to be, I was struggling a little. Yet, I looked at my little family and realized how grateful I was to just be here with them. We are all together and going through this together.
Sunday, November 23, 2008
On Monday, while I was in the middle of the last of my cooking spree -- 2 double batches of muffins and a 3-loaf batch of bread -- Rick called to say that the buyers were ready to close on Tuesday. I was thrilled! After 2 weeks of being told one thing and then another, I was glad it was going to be done. The bad news was that they had changed their mind about renting back to us until we closed on our new house. When we closed they wanted the keys. Agh! That meant we would have to finish packing and clean in 24 hours. They said they could push it out until Wednesday and Thursday to not cause too much stress, but if we did that we couldn't close on our new house, which we were scheduled to do on Wednesday. So, we decided to go for it. We had many friends help out that night and it all got done -- including the 72 muffins and 3 loaves of bread.
The next morning our realtor called their realtor to see why they weren't there for the scheduled walk-through and she said there might be a "hang-up" with closing that day; the buyers still had one last piece of paperwork to turn in. My first reaction was, "You have GOT to be kidding me." We had 2 loaded moving vans sitting outside our house, the house was clean and empty and we had reservations at a hotel for the couple of days until we could get into our new house. Well, our realtor called to talk to the loan officer and we found out the real story. I don't want to say bad things about their realtor, but .... agh! good grief! So, we cancelled our hotel reservations, got our phone and internet turned back on (which you know how trying THAT can be if anyone out there has AT & T), and started camping in our own home. But I was grateful for the cooking spree I had done the week before!!!!
We found out on Friday that all of the buyers paperwork has now been turned in and everything is sitting in underwriting, so we are hoping it goes quickly now. Our biggest cost at this point is having 2 moving vans sitting there that we are paying for by the day while we have waited for the buyers to get everything done. We really don't know how much of this is the buyers being flaky and how much is their realtor. We think it is the latter. We think they don't really even know all of what she had been saying to our realtor the last few weeks. We just pray this all really happens. I can't imagine moving everything back in at this point. What a mess!
We have talked so much about closings, etc. that the kids are getting to be pretty literate in all of this. We thought so anyway. Tonight, when we were talking about hopefully closing in the next few days, Emma said, "When are we opening on our new house?" She thought that since closing was part of selling, opening must be part of buying. :) She has been sick for the last few days and it was good to see a little happy spunk out of her.
Last night Rick and I went with some friends to watch the BYU-Utah game. Since I am blue through and through I won't even go into the game, but when we went to their home tonight, they had a red UofU jacket and hat on their wooden pilgrims just for us, to show what they were thankful for this week. Very funny, Mark and Katharine!
Thursday, November 13, 2008
8 favorite TV shows
1. Biggest Loser (except this season has been disappointing with the "drama")
3. Dancing with the Stars
4. Amazing Race (although I haven't seen any this season since our Media Center is packed away and I can't record the shows)
*sorry, I really don't watch much TV anymore. I feel too good these days. :) And now that I am not at my Mom's house there is no cable -- no HGTV (sob)
8 Favorite Restaurants
1. Mom's House - free, good food!
2. Jason's Deli
3. Sahbuddy's - Israeli food (fabulous falafel and hummus)
4. Thai Palace
6. Johnny Carino's
7. PF Chang's
8. My house -- really I'm too cheap to eat out much and I love to cook, so I end up thinking, "I could have made this better. It IS nice not to have to do the dishes, though.
8 Books You'd Recommend
1. Anything by Shannon Hale -- especially Goose Girl, Enna Burning and River Secret
2. Anything by Jane Austen - I have to admit that Pride & Prejudice will always be up there at the top!!!
3. L.M. Montgomery -- Emily of New Moon ranks as high as Anne of Green Gables on my list
4. Anti-Cancer: a new way of life by David Servan-Schreiber
5. The Whole Foods Market Cookbook
6. Raw Food Made Easy for 1 0r 2 people
7. Any "Alfie and Annie Rose" book by Shirley Hughes. I HIGHLY recommend these books of hers, especially for people with little ones who have siblings (like "Alfie gets in first")
8. Biographies -- just about any
8 Things That Happened Yesterday
1. I cooked enchiladas, sweet 'n' sour chicken, chimichangas, beans and rice w/spicy sausage, chili, chicken noodle soup, and calzones to go in the freezer to make the move easier.
2. Helped Caleb with his Polish Texans Immigration Project, his spelling and his math.
3. Helped Emma with her homework.
4. Read to Emma
5. Went grocery shopping with my kids and still loved them when I got home (a major accomplishment)
6. Watched "Chuck" on nbc.com while I cooked
7. Felt accomplished with the above 6
8. Put my leg up while I waited for Rick to come to bed
8 Things to look forward to
1. A new house
2. A new house with no stairs
3. A new house with a bigger kitchen
4. A new house with a doggy door for the naughty puppy who won't tell us he needs to go out and then pees by the door.
5. A new house with french doors on the living room for a quieter piano
6. Waking up every day
7. Having energy when I wake up every day.
8. Seeing people I love every day.
*can you tell I'm not one bit excited about our new house! Only a few more days!
8 Things on My Wish List1. A relaxing holiday season (I absolutely refuse to be stressed this year, even if there are boxes surrounding me)
2. A long and healthy life
3. A new digital camera
4. More books (can you ever have too many?)
5. More sheet music (ditto)
6. Healthy children
7. Obedient children who never fight (okay, my Mom used to say that this is all she wanted for birthdays and Christmas. We would say, "No, REALLY, Mom! Tell us what you REALLY want!" I get it now)
8. A Temple closer than San Antonio
8 Things I Love About Fall
1. Christmas Music (we start before Halloween often in this family)
2. Christmas Decorations, smells and wrapped presents under trees (who cares what is in them -- it so fun to see them under the tree!)
3. Gingerbread Cookies and an excuse to make gingerbread (the cakey real stuff), for breakfast
4. Pumpkins -- pie, muffins, bread, etc
5. Thanksgiving -- This year we have soooooo much to be thankful for!!!!!!!!!!!!!
6. Christmas is coming, the goose is getting fat (please don't let me be the goose this year!)
7. Sleeping with the windows open/No more Air Conditioning
8. Nippy mornings and glorious afternoons
I am not tagging anyone else, but if anyone else wants to do it, I would read it with pleasure.
Happy Fall! Happy Thanksgiving! Happy Holidays! Enjoy the smells of the holidays! Hug the people you love today!
Monday, November 10, 2008
Caleb has been quite the little man around here, lately. He has been begging to be allowed to mow the lawn. He finally got to. Our lawn mower isn't self-propelled, so I don't know if he will be begging again anytime soon, but he did such a good job, he is hired for the job. He also likes to fix some of his own meals. Breakfast is his favorite and his specialties are: omelets, eggs/toast, and breakfast tacos. He can also make grilled cheese sandwiches, mac and cheese and is learning to make pizza dough for pizza/calzones. Emma's specialty is breakfast, too -- she can pour a mean bowl of granola. :) She almost has mac and cheese down and loves to make her own sandwiches. They both are big help cleaning and folding laundry and doing dishes. Emma thinks doing dishes is fun. Let's see how long THAT lasts. :)
Thursday, October 30, 2008
Rick decided to take the kids to Subway to give me a break (I fell in love with him all over again for that) and I drove home ALONE!!!!!!!!!! Alone, alone, alone, alone. As I drove, I realized that it has been 2 weeks since I have been absolutely all alone. No kids, no husband, no one but me.
I put a Renee Fleming CD in the stereo (even people who don't love opera could like her, I think) and felt the anxiety start to melt away. I was so in the zone -- not good when you are driving -- I missed my exit, enjoying the strains of "O Mio Bambino, Caro". So, I ended up taking the long way home and getting a little more alone music time. It was worth it, even though taking that way landed me in a traffic pile-up. I was enjoying my alone time so much I even let several people go in front of me. :)
I do not zone out to opera often enough. I am determined to do it more often - not driving of course.
Wednesday, October 22, 2008
Monday, October 13, 2008
Wednesday, October 8, 2008
We are back to piano lessons and school work and going to the library. My brother Barry came to see us. That was so very fun. I hadn't seen him in over 2 years! Yikes. We took him to the Round Rock and to Round Rock Donuts. The kids had fun with that, too. They both thought they had discovered gold in the water by the Round Rock. Caleb and Emma were convinced they were starting another gold rush.
Dobby has adjusted well to his new home. At first he was terrified of the stairs. He got up the first 2 and started to cry - too scared to go up or down. Now he runs up and down them constantly. He LOVES his kids He follows them around all day long. And after they go to bed, we have to shut their doors, because he won't leave them alone. If they shut their doors he stands outside them and howls. Other than that, he is a quiet dog. We were surprised, as we heard that chihuahuas were yippie.
It has been nice to see people; although we haven't gotten to see everyone we want to, yet. And it was weird at Church on Sunday, now that our ward is soooo much smaller. But we are adjusting and having a great time doing it.
Friday, September 26, 2008
Wednesday, September 24, 2008
We had a fun birthday weekend with the kids. Rick flew in Thursday night on Emma's b-day and we spent Friday celebrating Caleb's birthday. In the afternoon we drove to Queen Creek to Brady and Berta's house. My Dad and Sharon were there to visit. Caleb got to play Uncle Brady's Wii and some Xbox games we don't have. He thought that was cool. Aunt Berta let Emma, Cat and Sarah (cousins) play with her make-up. Oh wow, what that a hit. I have to get the pictures from Berta - they are too good to pass up.
Saturday morning we went to the zoo. I love zoos a LOT, but we did get pretty hot there. We drank a lot of water and went in the shade, when possible. The orangatuans were my favorite this time at the zoo. The baby was a riot -- so smart!
Rick and I got to spend a little bit of time alone Saturday night - yay! He left Sunday night but will be back on Thursday. I can't believe we are really truly going home! And cross your fingers, our house is under contract. We hope it will go through smoothly and quickly.
Just think, I will be sleeping my own bed in 4 nights. I hope to get home on Saturday in time to make it to the General Relief Society Broadcast. Is there anything going on before it at the Stake Center? I need to find out.
Thursday, September 18, 2008
Thursday, September 11, 2008
Monday, September 8, 2008
Also, my liver enzymes started dropping!!!! That is a great sign. We are so happy!
So, when I post again it should be with good results - I hope, I hope!
Another reason to post is to put up some pictures of the kids. Their cousins and aunts and uncles celebrated their birthdays on Sunday (pretty early, but it was the weekend that worked). The kids got spoiled rotten by their aunts and uncles! They were so happy and excited. And I was tired! I had to make 2 cakes on Saturday/Sunday. Caleb did want to decorate his own and that was ok with me. This is monkey business having kids whose birthdays are right next to each other! :) September is an expensive month for us. Rick's birthday is August 26, Emma's is September 18 and Caleb's is September 19th. I had a good incentive (okay, bribe) for them today to get their schoolwork done quickly; they could play with all their new stuff as soon as they were finished. I have never seen Emma get done sooooo cheerfully and soooooo quickly!
So, Caleb and Emma get to celebrate their birthdays 2 times. They don't mind. We will celebrate it again on their real birthdays when Rick comes into town the 18th - 21.
Thursday, September 4, 2008
Tuesday, September 2, 2008
Friday, August 15, 2008
Finally! I am writing in here again. Things are going well. We had a great time in Texas sleeping in our own beds and seeing some of our friends. We wish we could have been there longer to see EVERYONE! My goal is to be back by the beginning of October - for good! Keep your fingers crossed.......
Sunday, August 3, 2008
Wednesday, July 23, 2008
My hair didn't lose anytime falling out faster than ever with starting chemo treatments this past week. I made my sister and sister-in-law promise me on Sunday that they will tell me when I need a wig. Ugh. It is too hot here, but I will never go completely bald - so I won't do the shaved thing.
On a good note - I drove the other day for the first time. Easy as ever! AND I finally got to get in the pool on Saturday!!!!! It felt soooooooooo good! On Monday my Occupational Therapist worked with me on balance doing exercises in the pool. It made it more fun and less stressful since I knew I wasn't going to fall over, but it was hard - very good for my flabby stomach.
My Mom, Caleb and Emma and I are driving to Austin for a few days this weekend to go through some house things and see some people (like Rick). We are excited, even though we know we won't get to see even half the people we want to see in this very very quick trip. I am so glad I am feeling up to it and feeling more able at doing more things. It is exciting to be getting a little more independence.
Monday, July 14, 2008
Yesterday morning Lauree Strong came to visit from Austin and it was great to see her! And with her she brought presents from the Round Rock ward. I couldn't believe it! The kids were thrilled with their boxes and notes (Emma was still packing her box around last night at 8:00) and I LOVED the notes from the Relief Society and the picture Lauree brought that Jamie had made. I am so grateful for all that Round Rock Ward has done for us! They have surely gone far beyond the call of duty to help our family. I am overwhelmed and it gives me something to work for so I can be of service to others someday. I know the Church is the Church everywhere, but I will always, always, remember Round Rock Ward with such happiness and love -- as a great example of what a ward can be when people love the Savior and want to serve His people.
As far as me, I have been working on my crutches (they are the kind that go around your arm- not the ones that go under your arm). They are harder for me and very scary. With a walker (which makes me feel like I am 85), if I am doing something and I lose my balance, I can grab the walker. With the crutches, if I lose my balance, I am going DOWN! But I am determined to get used to using them, because going somewhere like Church would be easier with crutches.
I also start chemo again this week. I have lost enough hair, so I am not anxious for this to start again. BUT the PET scan they did in the hospital compared with the PET scan they did in
April showed HUGE results. I went over it with my Dr. this week. I was amazed. And I feel so much more hopeful.
I will end with a funny little story. On Friday, I finally got a Port put in. It was NOT fun going back to a hospital, but at least I knew I would be leaving in a few hours this time. Anyway, when the Dr. doing the procedure came to talk to me, he said, "you are little enough that this will show through your skin". I could have kissed him! It has been years since anyone has said I was "little" enough for anything. I know I still have a little ways to go, but to be told that was great! It is too bad I had to get so sick to lose all the weight without even trying after years of struggling sooooo much with trying to lose weight and not figuring out why it wasn't working.
I am grateful for the peace that came to me today in Relief Society when we were hearing a lesson on prayer and personal revelation. I am so grateful to know that I can pray and receive answers to my prayers. I don't know where I would be without that. What a loving Heavenly Father we have who hasn't left us alone on the earth -- no matter how alone and scared we might feel at times.
Sunday, July 6, 2008
Thursday, July 3, 2008
My kids came home today!!!!!!!!!!!! It has been GREAT to see them. I think they each grew 6 inches while they were gone, they each look so big! Rick surprised me at the airport -- he is here for the 4th of July weekend. What a great weekend it will be. I am so excited.
I am learning to get around the house better. I can shower completely by myself now. It seems so silly to be excited about something so simple, but it is a step towards independence. Getting dressed, getting in the car, showering, getting around the house, etc. I am getting there. I am so impatient. I want to be able to do it all NOW!
Right now I am so lucky to have some sisters here. Deborah came from Spokane, WA and Angela came from Bluffton, SC. It makes me miss the other sisters, but it is fun. On Wednesday morning all the sisters and sisters-in-law and Mom went to the temple. It was sooooo nice to be there after so many months of not being able to go, but I have to admit, I was anxious because of not knowing what to do and where to go in a wheelchair.
Happy 4th of July!
Sunday, June 29, 2008
I am so glad to be feeling better now, because my sister Deborah is here for the next week and my sister Angela is coming in a few days for a few days. We will have so much fun together. I am so grateful they are here. Sisters are the best! My cousin Bryan came last week and I hated being sick while he was here. It was still good to see him and I am so grateful to him for making the trip.
Learning to do things with one leg is a whole new world for me. I am determined to get it all, but I have to admit that there are way too many things I took for granted. Just getting in the shower is quite the to do. But I will get it. I appreciate Rick and all the work he is doing on the house. Regardless of where we end up we have to sell our house. I have to do a one story. And I appreciate all the people in the ward who have helped. It is very humbling.
Thanks everyone for the love and support. I appreciate it. We love you all!
Monday, June 23, 2008
As far as the surgery, I am recovering ok. Everyone says I am progressing at miraculous speed. I just think I am impatient and anxious to GET GOING! I can get myself dressed all the way from the skin out. I can go to the bathroom by myself, I can get into a wheelchair and use it (same with a walker), I am getting there. Everyone is so supportive and encouraging. I am very grateful!! As far as Stake Conference, thanks to everyone who was so helpful!
Stake Conference will be amazing, I know there will be a General Authority there. Enjoy it for me.
Thursday, June 19, 2008
First and second surgeries went well. Dr Seidel said things went really smoothly and her vitals were really strong through the procedures.
There's still a lot of pain, but Anna's spirits are up. Anna has enjoyed everyone's ideas on the benefits of having only one leg. She's put together quite a list. The humor has been good for all of us and it falls right in line with Anna's coping mechanism. However, I think I took it over the top on the humor though when I suggested we change her name to Eileen.
Physical and Occupational Therapy is progressing nicely. I have been so impressed with Anna's ability to take on the challenge of re-learning how to perform daily activities. Unfortunately, she doesn't give herself enough credit on the victories she makes everyday, but she's getting better at it.
There's still a long road ahead, but we've got lots of help from above.
Thanks to everyone for your prayers and support. We have felt your faith and are grateful for this miracle.
Saturday, June 14, 2008
After being sick all last weekend, I was admitted to the hospital Mon morning.
Dr Seidel (the surgeon) is monitoring my care until surgery. After having a myriad of tests (x-rays, CT scans, a MRI, a PET scan, and bloodwork), we had a difficult choice to make.
The first choice was the amputation of my leg, which would remove the tumor and infection at once. This is because the tumor inoperable because it was so large and twisted around muscle, nerves, and tissue. This option would have a faster and easier recovery.
The 2nd choice was to "leave it alone", "enjoying the time I had left", and "going whole". After discussing w/ Dr. Seidel what the prognosis was for "time left", I realized that if I just left it alone, I wouldn't see a lot of "time left" because the infection was so bad that it would be a matter of a few weeks not years.
So… we have decided on getting the amputation done. It will happen Monday morning at 8am. I am scared, but I feel so at peace with this. And that did NOT happen overnight. J There are 3 Orthopedic Oncological Surgeons in the State and none of them take the insurance we have, so we will have to figure that out, too. I am still in the hospital and will be until after the surgery – about 3-5 days after. I don't have a lot to do, but the pain medication makes me loopy and VERY sleepy, so I spend a lot of time sleeping. I am afraid I haven't been good company for anyone who has come to visit, since I have either been crying or falling asleep when they come.
We told Caleb and Emma on Thursday afternoon. Emma started to cry and Caleb's eyes got very large and he got very serious for a minute. Then, he aksed, "Mom, will you get one of those robotic legs?" Emma got very interested in the conversation at that point. Caleb was disappointed that I wasn't getting a robotic leg, but then he said, "Well, at least you can get one of those Handicap Parking things for going anywhere." J I love that!
Here is a list we came up with of reasons that having one leg is great or why using a wheelchair or crutches are better:
I only have to shave one leg
Maybe pedicures will be ½ price for me
My socks will last twice as long
Going to a place like Sea World or the San Diego Zoo will be great: we will have a place to hang bags, etc and a lap for little people to sit on for a ride when their legs get tired of walking.
If I fly Southwest, I can always pre-board if I want to.
Here is our challenge to YOU:
We want you to send as many reasons that I will have it so easy. I could use reading them, and what a great list it could be. SEND THEM IN!
I have some really cute pictures of the kids. I will get them on soon.
Thursday, June 5, 2008
The kids are enjoying summer life here. They swim every day and play lots with cousins.
Thanks for all the prayers and encouragement. I appreciate it. It is working.
Wednesday, May 28, 2008
A couple funny from the kids in the last few days:
On Monday, Rick gathered the kids around to talk about Memorial Day. He had spent time reading about all the wars from the Revolutionary War to present talking about the number of people who fought and died and the history behind Memorial Day. We also read Uncle Randy's great email and looked at the pictures he sent. When we got to talking about the Middle East, Grandma brought up how fast we got to Baghdad and how the whole world watched it on tv, Caleb piped with how fast the bad guys got out of there and how they had to hurry "ON THEIR CAMELS." He is so smart and knows so much about so many things, it was so fun to see that there is still little boy in there with him thinking that they all ride camels over there in this day and age. My Mom and I were giggling as quietly as we could without him seeing. "Giddy-up camels, hurry, hurry, the U.S. are coming!"
Last night when I was putting Emma to bed she had a wind-up teddy-bear with her that played a nifty little version of "Twinkle, Twinkle, Little Star". She likes me to sing to her after we read to snuggle for a minute, so she said, "Let it go for a minute, Mom, it plays 3 songs: Twinkle, Twinkle, Baa Baa Black Sheep, and ABC's". I was thinking it must have played little variations. I listened to it a few times before I started singing with it and each time it played the same thing. I cracked up thinking that SHE heard 3 different songs just by what she sang. So I sang each one for her to the same tune and she was happy as a lark that she got al three songs.
Okay, so I think they are cute kids. I will keep them. It has also been nice to have Rick here. He has been so helpful and has fixed food, played with kids, and has been getting up at 5:00 to start work by 7:00am Austin-time. Nice for me, because then I didn't feel bad asking him to stop yesterday at 3:45, knowing that it was almost 6:00pm Austin-time. :) He's tuckered by 8:00pm, so I better start getting to bed earlier with him.
Wednesday, May 21, 2008
This picture is for Aunt Deborah's sake. Abigail is feeling much better about her hair after playing spa with her cousins. :) Many thanks to Auntie Berta and Grandma!
Caleb is enjoying being back in Karate!
Emma, Gracie and Abby planting Sunflower Seed SHELLS. They were mighty disappointed that nothing grew, but it kept them busy for 3 hours one Saturday morning! We'd better get them some real seeds.
Doesn't Emma look beautiful! Aunt Karson made the cake, helped her decorate it AND painted her fingernails AND curled her hair for a fun Girls Night. Emma was thrilled!
Cute kids, huh? I am a bit prejudiced, but I love them!
More stuff on the sore, the tumor, etc. Good and bad, well gross. I guess we could call it the good, the bad and the ugly. I won't show pictures of THAT
Good first: the tumor has shrunk MORE this week. We are truly grateful. I am hoping it continues at this rate. SOMETHING has to make this pain worth it.
Bad (not BAD just gross) news: The next part gets a bit gross, so don't read if you might get queasy. I am back on more anti-biotics; yes, a little more infection, and watching to keep it at bay because -- the sore is nothing more than the tumor itself coming out through the skin. UGH! Dr. Lodi (while he is trying to be compassionate about the pain) is ecstatic. He has seen it do this many times with breast cancer, but never with a liposarcoma, but he isn't completely surprised. Apparently, the tumor is now dying and at a faster rate than my body can absorb it and tackle it internally, so it is literally pushing it out. Raw tissue being exposed (plus the pushing out) makes me want to say bad words, but that doesn't make it feel any better, so what is the point? There is no fun in being naughty enough to say the words.
So.....I hope it keeps going quickly (relatively speaking), because that would make this pain a lot more bearable and seem worth it. Actually the pain is NOT really very bearable, but it would be worth it. :)
My hair loss has slowed down a LOT, but I am still cutting some off -- any input on style? It still has to be long enough for a pony because it is now over 100 degrees here and I have days I just don't feel up to fixing my hair.
Rick is coming on Friday to stay for 3 weeks. We are excited to have him here. Let's hope we all still love being together all day every day after 3 weeks. With the kids homeschooling, playing with cousins and lots going on at Grandma's house, Rick working from home, helping out with meals, etc and me at the Dr. most of each day, it could get crazy. :)
Friday, May 16, 2008
Yesterday, in checking this horrible sore (I promise I won't swear although I feel like it at moments - it hurts like*%#@*!) Dr. Lodi measured the big tumor in my leg. It has gone down by 30 cm since I have been here! With what I have gone through lately, I would have taken 10 cm. Also the tumor by my shoulder continues to shrink. We haven't measured it, but it is smaller. We can tell. As I have lost weight up on the top of my body, it has gotten smaller, too. It would be more pronounced as I've lost weight if it hadn't shrunk, so we know. Plus, Rick is a good judge. Since he doesn't see me for 2 weeks at a time, he can tell when he comes.
Keep the prayers coming -- I believe in them!!!!! We are going to lick this! It makes the hair I lost the other day worth it. I will lose all my hair to see this GONE! Hair can grow back!
Thanks to everyone for their love and support! I am so humbled with all the ANGELS that Heavenly Father has sent into my life.
Wednesday, May 14, 2008
I AM still alive. I didn't realize it had been soooo long since I had posted. Honestly, the last 2 weeks have been incredibly rough!!! To put it slightly. The infection I mentioned earlier flared to a pretty scary degree. I had a low grade fever during the morning which would start to go up to around 102 - 103 or higher at night. It never left and I was a pretty sick puppy for the last 2 weeks. After a weird heart/breathing thing last Friday which landed me a trip in an ambulance to the hospital, I guess my body decided that that was it. Friday night (or more accurately Saturday morning) at 2:30am, my fever BROKE. I woke up absolutely drenched from head to toe. I was so excited, I woke up Rick (who was here visiting). He was happy for me, but in the middle of the night, I didn't get much reaction from him. :)
So, it took a couple of days after that to feel more back to normal, but I am feeling much spunkier now FOR REAL and getting out of bed isn't such an incredibly hard thing to do.
The kids weathered the sickness, but I think I wore everyone around me out. I hate that. Mom isn't getting well like she should, Aunt Karson is sick now after taking so much care of me and my kids, Aunt Sarah must be WORN out, too. Hopefully, now, I can step back into being a MOM. My days are long at the clinic sometimes and I feel like a working mom. *sigh*
In the middle of being sick, my picc line starting clotting so badly that we couldn't use it and the Dr. wanted it OUT. With the infection, they couldn't put in a port, so last week, with a fever and feeling like death, I had the picc line taken in and a TAK line put in my chest. It wasn't fun. But the Dr. is sure that the reason I couldn't get rid of the infection after ALL the antibiotics I was on, is because it was in the picc line, too. He is probably right, since 2 days after getting it out the fever broke finally.
The kids started swimming lessons this week and Caleb is now back in karate, so they are finding activities here. It is good. They still love playing with cousins and think they are abused if a day goes that they don't see any cousins to play with ( I think it has happened only 2 or 3 times the whole time we have been here). They are good kids and I am glad they are here with me. We miss Rick like crazy and look forward to the times he can come.
Hopefully, next time I can report something a little more cheerful. The good news is: I think we have the infection beat! I am still finishing my last antibiotic, but then I think we are done! Hallelujah!
Thursday, May 1, 2008
Tuesday, April 22, 2008
So, hopefully, the next entry will have good news: back to treatments!
The kids are doing great! Their school is going well and they are already swimming when they can. What a blessing to be by cousins!
Sunday, April 20, 2008
Wednesday, April 16, 2008
After my treatment at the center, I got home to boxes of presents. Wow!!!!! I was so surprised and touched, I just sat there and bawled! My kids said I have to wait until my birthday to open them, so I don't know what any are yet. But it looks like some friends in Austin had a party for me and sent it here. I am so touched! There is more to look forward to on my birthday than getting chemo and having a colonic! :)
We are sad that Rick hurt his ankle playing volleyball and hope that it isn't broken. Golly, he goes to get exercise and is having a great time and BAM! So my prayers are with him tonight and I wish I could be there. I am grateful for all the people looking out for him!
Our family has just been so supported and taken care of -- I am sooooo grateful for friends, family, and the Lord.
Tuesday, April 15, 2008
Some people have asked what is in my green juice. Here is the daily recipe:
lemon (to get rid of the bitter taste from the greens)
green apple (to sweeten it up a little -- green apples are very low in sugar so I can include them and Dr. Lodi says that if the juice doesn't taste good, what is the point; you're not going to want to drink it)
I drink about 3 qts of that each day. That is my food. I am pretty done at this point with not chewing, but on Thursday for my birthday, I might splurge with some homemade flax seed crackers that Mom and Karson made to take to the center (you know, like how kids bring cupcakes on their birthday -- I am bringing flax seed crackers to all my little friends and nurses)
On IPT days, right after they adminster the chemo and the other drugs, I get to have my sugar splurge to get my blood sugar back up quickly. On the juice fast, that means more juice. But this juice is AMAZING! My Mom has mandarin orange trees in her back yard and she peels the oranges and drops the sections into the juicer and I get this thick, beautiful orange juice that is the sweetest thing you have ever tasted! 2 qts of it every Tues and Thurs. When I am done with the juice fast, I will get to eat a banana or orange or watermelon or some high sugar fruit. Then a salad with olive oil on it. Apparently, olive oil can be huge in not letting your blood sugar fall. So, high sugar fruit to bring it back up and then olive oil to keep it there.
So there is a little info on my eating. Sorry if it is boring. I thought it would be great to get it down.
One last note -- GO ALI for winning Biggest Loser! Finally a girl! And isn't she darling!!!!
Sunday, April 13, 2008
There isn't much to report today. I just thought I would put up some pictures that we took this weekend. Some of the family and one of the kids on their hike. For those of you who don't know, the 2 cute boys in the front of the picture from the hike are Kaden and Kohl Knopp, two cousins who live here in Mesa. This weekend has been full of cousin fun -- which we are so grateful for. The kids are making great relationships and memories to last a long time.
Friday, April 11, 2008
Rick got here tired and we were all disappointed about that. In other words, he wasn't much fun today. He is paying for it by having me put it here. :) He is awake enough now to be playing xBox with Caleb, which makes Caleb happy, so that is good. Tomorrow he is taking the kids hiking, swimming, and shopping for birthday presents for cousins and their Mom. So he will get to redeem himself in his kids' eyes. Even tired, though, Rick was helpful by watching Matthew for Spencer and Karson while they got ready for their date. Then he snuggled Emma while she didn't feel good. It really is good just to have him there.
My pain is down again today and the tumor is definitely less swollen. And no IV's until Monday. Hurrah! I have a PET scan scheduled for Wednesday morning and I don't know if I want to know the results of that. I am sure curiosity will win out. I just don't know if I really want to know if it has spread to places I didn't know about. There are enough I DO know about. Signing off until Monday or so......